The Association for Multiple Endocrine Neoplasia Disorders (AMEND) is a patient group supporting and informing families affected by these rare genetic disorders and their associated endocrine tumours, which include functioning tumours of the adrenal glands, thyroid gland, parathyroid glands, pituitary glad, and endocrine pancreas. Symptoms are varied and can be episodic. The average time to diagnosis for an index patient is 4 years.